Patient & Community Support Specialist (Part-Time)

St. Charles, IL (Hybrid/Remote Options Available)

Make a Meaningful Impact

NF Midwest is seeking a Patient & Community Support Specialist to help strengthen support, education, and connection for individuals and families affected by neurofibromatosis (NF).

This is a program-focused, relationship-driven role for someone who is passionate about improving how individuals and families navigate complex medical conditions. You’ll play a key role in developing educational programs and resources—including online and in-person learning opportunities—while also engaging with community members to provide guidance and support when needed.

You’ll help bridge the gap between patients, information, and care—developing meaningful educational offerings, collaborating with clinics and researchers, and ensuring individuals feel informed, supported, and connected.

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Ready to Apply?

Submit your application today and join our talented team at Neurofibromatosis Midwest.